Table of Contents
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Archives and Special Collections Finding Aids
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| Collection |
| Title: |
ACT UP / Boston (Raymond Schmidt and Stephen Skuce) collection |
| Dates: | 1987-2007 (bulk 1988-1995) |
| Call Number: | M149 |
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Series:
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Administrative, 1987-1998
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| Volume: | 1.30 cu. ft. |
| Arrangement: |
Alphabetical |
| Summary: |
This series documents the founding of ACT UP / Boston, its organizational strategies, and the meetings held by its general membership, the IV League, and the Treatment Issues Committee. Also documented are the organization's fundraising efforts and its role as the training ground for AIDS / HIV activists. Records consist of meeting minutes, the ATTITUDE! newsletter, correspondence, budgets, newspaper clippings, and publications. Of interest are the files on the history of the organization which explain its role in AIDS activism, and the Treatment Issues Committee meeting minutes, which describe the organization's philosophy and contain information regarding its successful campaigns targeting the medical profession, insurance and pharmaceutical companies, and the federal government. |
| Box | Title | Date |
| 1 | Articles of Organization and Bylaws | 1990-1992 |
| Committees | |
| 1 | | Agendas and Notes | 1988-1989 |
| 1 | | Announcements, Meeting | n.d. |
| 1 | | General Body: Meeting Minutes (7 folders) | 1988-1994 |
| 1 | | IV League (4 folders) | 1991-1994 |
| 1 | | Other Meetings: Minutes | 1989-1994 |
| 1 | | Treatment Issues (6 folders) | 1990-1992 |
| 1 | Correspondence (2 folders) | 1990-1994 |
| 1 | Donors | n.d., 1991-1992 |
| Financial | |
| 1 | | Haymarket Grant | 1991, 1994 |
| 1 | | Statements, Annual | 1990-1993 |
| 1 | | Tax Returns | 1988-1996 |
| 1 | Fundraising (2 folders) | 1991- |
| 1 | History | n.d., 1988-1989 |
| 1 | New Member Information Packet | n.d. |
| 10 | Newspaper Clippings (5 folders) | n.d., 1988-1998 |
| 1 | NEXT: Articles | 1988-1989 |
| Notes | |
| 1 | | Raymond Schmidt | n.d. |
| 1 | | Stephen Skuce | n.d., 1991 |
| Publications | 1988-1989 |
| 1 | | General | n.d., 1989-1991 |
| 1 | | Newsletter: ATTITUDE! (2 folders) | n.d., 1989-1990 |
| 1 | Obituaries | 1991-1995 |
| 1 | Recognitions and Awards | 1991-1992 |
| 2 | Speeches and Writings | n.d., 1994 |
| 2 | Strategies | n.d., 1993 |
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Series:
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Campaigns and Demonstrations, 1988-1997
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| Volume: | 2.35 cubic ft. |
| Arrangement: |
By type of campaign; then alphabetical |
| Summary: |
This series documents the efforts of ACT UP / Boston to heighten public awareness of the failure of the government, medical, insurance, and pharmaceutical industries to address the AIDS crisis in Boston and throughout the country through its public appearances, demonstrations, and acts of civil disobedience.
The Public Appearances subseries documents meetings, events, and conferences in which members participated. The Treatment Related subseries documents the medical problems experienced by people with AIDS, research that was being done on drugs such as ddC and ddI, and the demonstrations that were held in response to these issues. The effect of AIDS in populations other than gay men, including women and IV drug users, is also documented. The Public Awareness Subseries documents the methods by which the organization sought to raise public awareness of AIDS, including demonstrations held at Holy Cross Cathedral and work with state officials to fund AIDS research and treatment. Records include reports, newspaper clippings, flyers, clinical trial reviews, meeting notes, and newspaper clippings.
Of special interest are the Women and AIDS folders, which detail the problems specifically encountered by women with HIV, and the Prison Issues folders, which describe the plight of inmates with AIDS and ACT UP's advocacy efforts on behalf of that population. Also of special interest are the AZT, Astra / Foscarnet, and "Approve ddI now" demonstration material, which provide insight into the radical strategies used by the organization, and the notes in the Clinical Trial Reviews, Progressive Multifocal Leukoencephalopathy, and Mycobacterium Avium complex folders, which illustrate the efforts ACT UP / Boston members made to educate themselves so they could effectively and articulately advocate for change within the medical establishment. See also Series 1, Administrative, Treatment and Issues Committee Meeting Minutes for discussions regarding campaigns and demonstrations and Series 5, Audio-Visual Material and Memorabilia, for photographs, posters, buttons, and T-shirts that either document, or were used during the campaigns and demonstrations. |
| Box | Title | Date |
| Public Appearances | |
| 2 | | General: List of Activities | 1988-1990 |
| 2 | | Burroughs-Wellcome: Day of Dialogue | 1992-1993 |
| 2 | | Fluconazole | 1989-1990 |
| 10 | | Flyers | n.d. |
| 2 | | Names Project | n.d., 1993 |
| 2 | | National Commission: Presidential Commission on the Human Immunodeficiency Virus Epidemic Rally | 1988-1990 |
| 2 | | National Institutes of Health | 1990 |
| 2 | | Prevention of Opportunistic Infections: Update | 1991 |
| 2 | | PRIM&R: AIDS Clinical Research and Care: Meeting the Challenges of an Epidemic in Flux Conference | 1992 |
| 2 | | Tufts: Dealing with Uncertainty (3 folders) | 1994 |
| Treatment-Related | |
| 2 | | ACTG 076 / Prenatal and Informed Consent | n.d., 1990 |
| 2 | | ACTG 175 | 1991 |
| 2 | | AIDS Action Committee (3 folders) | 1995-1996 |
| 2 | | Astra / Foscarnet (8 folders) | 1989-1992 |
| 2 | | AZT Price: Demonstration material | n.d. |
| 2 | | Boston City Hospital | 1989-1993 |
| 2, 10 | | Burroughs-Wellcome Bill (2 folders) | 1990 |
| 2 | | Clinical Trial Reviews (6 folders) | n.d., 1994-1997 |
| 2, 3 | | ddC (3 folders) | 1990-1993 |
| 3 | | ddI: "Approve ddI Now" | 1990 |
| 3 | | Jerome Groopman: Articles | n.d., 1989-1990 |
| 3 | | H. 226 Compromise Bill | 1989 |
| 3 | | Harvard Medical School | 1988, 1990 |
| 3 | | Kaposi's Sarcoma (2 folders) | 1992 |
| 3 | | Mycobacterium Avium Complex (3 folders) | 1990-1996 |
| 3 | | Massachusetts General Hospital | 1991 |
| 3 | | Neuropsych: Position Paper | 1991-1992 |
| 3 | | Parallel Track (3 folders) | n.d., 1991-1992 |
| 3 | | Parallel Track and Accelerated Approval | 1993-1995 |
| 3 | | Peptide T (5 folders) | 1989, 1991 |
| 3 | | Pneumocystis Carinii Pneumonia (12 folders) | n.d., 1988-1991 |
| 3, 4 | | Progressive Multifocal Leukoencephalopathy (6 folders) | 1989-1997 |
| 4 | | Standard of Care (2 folders) | 1989-1992 |
| 4 | | Summit with Federal Drug Administration (FDA) and Key Drug Companies (5 folders) | 1993-1995 |
| 4 | | Vaccines | 1990-1993 |
| 4 | | Women and AIDS (3 folders) | 1990-1993 |
| Public Awareness | |
| 10 | | Boston Politics | n.d., 1992 |
| 4 | | Catholic Church (4 folders) | 1988-1990 |
| 4 | | Commonwealth of Massachusetts: State AIDS Budget (2 folders) | 1988-1991 |
| 4 | | Federal Government | 1991 |
| 4 | | Gay Community News | 1988 |
| 4 | | Governor Michael Dukakis House | 1988 |
| 4 | | HIV Testing: Newspaper Clippings | 1989-1992 |
| 4 | | HIV Treatment Networking Day: Conference Summary and Agency Contacts | 1995 |
| 4 | | Housing: CARE Act | n.d., 1990-1994 |
| 4 | | Immigration: "AIDS State of Emergency" | 1991 |
| 4 | | Insurance (2 folders) | 1990-1991 |
| 4 | | International Conference on AIDS: Boston Planning (2 folders) | 1990-1992 |
| 4 | | Massachusetts Commission Against Discrimination | 1990-1992 |
| 4, 5 | | Prison Issues (6 folders) | 1992-1994 |
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Series:
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Clinical Trial Protocols, 1988-1997
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| Volume: | 2 cubic ft. |
| Arrangement: |
Alphabetical |
| Summary: |
This series documents ACT UP / Boston's involvement in monitoring the progress of drug testing in several clinical trial groups. Also documented, under the heading “Related Articles and Documentation”, are results of other clinical trials being performed throughout the country, opportunistic infections and experimental drugs, and the Madison Project, which was developed by researchers and activists in response to the disappointing lack of progress reported in AIDS biomedical research at the IX International Conference on AIDS. Records consist of clinical trial reviews, correspondence, articles, newspaper clippings, and newsletters from the Fenway Community Health Center and the People with AIDS Coalition. See also Series 4, Collaborations, for additional clinical trial reviews. |
| Box | Title | Date |
| AIDS Clinical Trials Group | |
| 5 | | 071: IV Ganciclovir for CMV | 1988 |
| 5 | | 100: SC-48334 Proposal | 1988-1989 |
| 5 | | 116, 117, 118: ddI Compassionate Use, Treatment IND Summaries | n.d., 1988-1989 |
| 5 | | 209: Vaccine | 1992 |
| 5 | | 230 | 1994 |
| 5 | | 243 | 1994 |
| 5 | | 261 | 1994 |
| 5 | | 343 | 1990 |
| 5 | | 1343-506: Viracept Protease Inhibitor | 1995 |
| ASTRA | |
| 5 | | 88-FOS-02 | 1988 |
| 5 | | 89-FOS-09A | 1989 |
| 5 | | 90-FOS-16 | 1990 |
| 5 | | 90-FOS-17 | 1990 |
| 5 | BI#742 | 1991 |
| 5 | CBCT P001: Pyrimethamine for Toxo Prevention (2 folders) | 1990, 1993 |
| Community Research Initiative | |
| 5 | | 91-04: Pentoxifylline | 1991 |
| 5 | | Acupuncture / Chinese Herbs Efficacy Study | n.d. |
| 5 | | Continued Use of Peptide T by Phase I Participants: draft | n.d. |
| 5 | | Double-blind, Placebo-controlled Rifabutin for Mycobacterium avium complex | 1990 |
| Related Articles and Documentation | |
| 5 | | 1592 Compassionate Use | 1997 |
| 5 | | Acyclovir | 1991-1995 |
| 5 | | Albendazole / microsporidiosis: Notes | 1991-1995 |
| 5 | | Atovaquone | 1992 |
| 5 | | AZT | n.d., 1986-1989 |
| 5 | | Burroughs-Wellcome | 1991-1992 |
| | Clinical Trial Design | |
| 5 | | | General | n.d., 1979-1995 |
| 5 | | | Placebos | n.d., 1958, 1987-1991 |
| 5 | | Compound Q | 1989-1991 |
| 5 | | Curcumin | n.d, 1993 |
| 5 | | D4T | 1993-1994 |
| 5 | | Drugs: General | n.d., 1992-1993 |
| 5 | | Experimental Treatments | n.d., 1988-1994 |
| 5 | | Food and Drug Administration: Accelerated Approval Update | n. d. |
| 5 | | Fungal | n.d., 1991 |
| 5 | | Hoffmann-LaRoche | n.d., 1992-1993 |
| 5 | | Hybridon, Inc. GEM 91 Information Package | 1994 |
| 5 | | Immune System | n.d., 1990-1994 |
| 5 | | Inter-Company Collaboration for AIDS Drug Development: Meeting Minutes | 1993 |
| 5 | | Madison Project | 1994 |
| 5 | | Minority Communities: Newspaper Clippings | 1989-1992 |
| 5 | | National Commission on AIDS: Reports | 1988-1991 |
| 6 | | National Institute on Allergy and Infectious Diseases: AIDS Agenda Newsletter | 1990 |
| 6 | | National Task Force on AIDS: Notes | 1995 |
| 6 | | Nucleosides | 1990-1991 |
| 6 | | Oncology / Lymphoma | n.d., 1989 |
| 6 | | Opportunism | 1989-1994 |
| 6 | | Opportunistic Infections | n.d., 1990-1991 |
| 6 | | Passive Immunotherapy | 1988-1989 |
| 6 | | Pharmaceutical Companies: Ethics | 1990-1994 |
| 6 | | Prevention: Newspaper Clippings | 1989-1993 |
| 6 | | Progressive Multifocal Leukoencephalopathy (PML) | 1992-1996 |
| 6 | | Prosorba Column | 1986-1989 |
| 6 | | Protease Inhibitors | n.d., 1994-1996 |
| 6 | | Researchers: Medical Organizations | 1990-1993 |
| 6 | | Tuberculosis | 1990-1992 |
| 6 | | Toxoplasmosis | 1987-1992 |
| 6 | | Underground: Buyer's Clubs | n.d., 1989-1997 |
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Series:
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Collaborations, 1988-2007
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| Volume: | 3 cubic ft. |
| Arrangement: |
Alphabetical |
| Summary: |
This series documents ACT UP / Boston's efforts to expedite drug testing through collaboration with other non-profit AIDS organizations and government departments both locally and throughout the United States. Records contain clinical trial results, correspondence, reports, newsletters from other AIDS organizations, fact sheets, and flyers. Of interest is the Barbara McClintock Project to Cure AIDS material and ACT UP / New York's files, which chronicle both the activism of ACT UP / New York, especially its Treatment & Data Committee, and its close working relationship with ACT UP / Boston. Also of interest is the Massachusetts Clinical Trials Directory, which was published as a result of meetings between ACT UP / Boston and the Commonwealth Department of Public Health. |
| Box | Title | Date |
| 6 | AIDS Action Committee (4 folders) | n.d., 1988-1994 |
| 6 | AIDS Clinical Trials Group (7 folders) | 1988-1995 |
| 6 | AIDS Coalition to Network, Organize, and Win (ACT / NOW) (3 folders) | 1987-1995 |
| AIDS Coalition to Unleash Power | |
| 6, 7, 10 | | New York (ACT UP / New York) (17 folders) | n.d., 1987-1995 |
| 7, 11 | | Other ACT UP's (3 folders) | n.d., 1988-1997 |
| 7 | AIDS Community Television | n.d., 1994 |
| 7 | AIDS Treatment Activist Conference, Washington, DC., 1990: Notebook | 1990 |
| 7-8 | AIDS Treatment News (12 folders) | 1986-2007 |
| 8 | Cambridge Cares About Aids | n.d, 1988-1989 |
| 8 | Catholic Church | n.d., 1988-1994 |
| 8 | Centers for Disease Control | 1991-1992 |
| Commonwealth of Massachusetts | |
| 8 | | Department of Public Health (2 folders) | 1988-1989 |
| 11 | | Division of Public Charities | 1989-1991 |
| 8 | | Governor's Task Force on AIDS (2 folders) | 1988-1990 |
| 8 | Community Research Initiative of New England (5 folders) | n.d., 1989-1992 |
| 8 | Community Research Initiative on AIDS: New York (2 folders) | 1987-1997 |
| 8 | Fenway Community Health Center | 1989-1992 |
| 8 | Harvard AIDS Clinical Trials Unit (2 folders) | 1989-1990 |
| 8 | March on Washington | 1987 |
| 11 | Mass ACT OUT | 1985-1990 |
| 8 | Monthly Medical Consortium | n.d., 1991-1992 |
| 8 | Multicultural AIDS Coalition: Information Package | 1993 |
| 8 | National Task Force for AIDS Drug Development | 1995 |
| People With AIDS Coalition | |
| 8, FF4/D2 | | Boston (2 folders) | n.d., 1989-1990 |
| 8, FF4/D2 | | New York (2 folders) | n.d., 1987, 1993 |
| 8 | Positive Directions: Newsletters | 1988-1990 |
| 8, 9 | Project Inform: PI Perspectives (3 folders) | 1986-2002 |
| 9 | Statistical Data Center of the AIDS Clinical Trials Unit: Meeting Minutes and Reports | n.d., 1990 |
| 9 | Statistics: AIDS Newsletter | n.d., 1993-1997 |
| 9 | United States Department of Health and Human Services: (4 folders) | 1993-1997 |
| 9 | United States Food and Drug Administration (9 folders) | n.d., 1988-1997 |
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Series:
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Audio-Visual Material and Memorabilia, 1989-1992
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| Volume: | 3.7 cubic ft. |
| Arrangement: |
Alphabetical by format |
| Summary: |
This series documents ACT UP / Boston's efforts to raise public awareness of the AIDS epidemic visually through its campaigns and demonstrations. It includes banners, buttons, photographs, and T-shirts. Of interest are the photographs of a Political Funeral in Washington, which capture ACT UP / Boston members throwing the ashes of deceased members onto the White House lawn; the banners used at vigils at Lars Bildman's home, depicting a diseased eye; and the WBUR news segment reporting on ACT UP / Boston's effectiveness in negotiating with pharmaceutical companies. See also Series 1, Administrative and Series 2, Campaigns and Demonstrations, for additional information. |
| Box | Title | Date |
| 9 | Audio Cassette: WBUR Interview | n.d. |
| 9 | Contact Sheet: People Act Up Press Writing Group | 1989 |
| Memorabilia | |
| FF4/D2, Rolled | | Banners (5) | n.d. |
| 9 | | Buttons | n.d. |
| 9 | | Citation: City of Cambridge | 1990 |
| 9 | | Matchbooks: "Condoms: Get into 'em" | n.d. |
| 9 | | Ping pong eyeballs | 1989 |
| FF4/D1 | | Posters (2) | n.d. |
| 9 | | Stickers: Silence=Death | n.d |
| 9 | | T-shirts (8) | n.d. |
| Negatives | |
| 9 | | ASTRA Pharmaceuticals, Westboro, Mass | 1989 |
| 9 | | Attitude! Newsletter | n.d. |
| Photographic Prints | |
| 9 | | AIDS Action Committee Award | 1990 |
| 9 | | Attitude! Newsletter | n.d. |
| 9 | | Burroughs-Wellcome Working Group | 1990 |
| | Campaigns and Demonstrations | |
| 9 | | | ASTRA Pharmaceuticals (3 folders) | 1989, 1992 |
| 9 | | | “The FDA Has Blood on Its Hands” | 1989 |
| 9 | | | Harvard School of Public Health: "Approve ddI Now" | 1992 |
| FF4/D1 | | | John Hancock | n.d. |
| 9 | | | Hands Around the White House | 1992 |
| FF4/D1 | | | Recognition Awards Dinner | 1992 |
| 9 | | | Washington, D.C.: Political Funeral (2 folders) | 1992 |
| 9 | | Members | n. d. |
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